Garance's Story

Age: 11-years-old

State or Country: France

Date of Diagnosis: 2021

What is the hardest part of your day? Seeing seizures from epilepsy, struggles with weight gain,  and cognitive difficulties. 

What does your child struggle with? Epilepsy and pains within the hips, spasticity, and the frustrations of not being able to express herself.

What brings your child joy? In our mind, Garance loves the presence of  animals,  the ambiance of the sea, having a body massage, and going on walks with her parents. 

What do you hope for your child? We hope that one day she may be without pain and without cries, may she be serene and at peace.