Our Kids

The children with NARS1 mutations all hold a special place in our hearts, and are fighting everyday to live a normal life. 

Here are some of the kids whose lives you will change by donating. Please click on their names to read each of their stories.

Rory Belle

United States

Grady

United States

Mavi

Turkey

James

United States

Evan

Canada

Garance

France

Sara

Poland

Otavio

Brazil

Joseph

United Kingdon

Cian

Ireland